About us

Fight Against Blindness was founded and registered with the Charity Commission in 2008.

Patron - Mrs Julie Spence OBE QPM DL

Lord Lieutenant of Cambridgeshire

Vice Patron - Sir Hugh Duberly  KVCO, CBE

Vice Patron - Mr Benjamyn H Damazar JP DL

Deputy Lord Lieutenant of Cambridgeshire

There are five trustees including the chairman who has supported charity work and fundraising for the blind for over twenty years.  All trustees are unpaid volunteers.

A key objective of the charity is to help children and families affected by sight loss adjust to and cope with the challenges a visual impairment presents.  A diagnosis of a condition that leads to sight loss can be incredibly hard to accept and adjust to.  Many conditions are progressive in nature, and both parents and the child or young person have to adapt and incorporate this into their lives.

Coping with the prospect of progressive (and often aggressive) visual deterioration is challenging and sight loss impacts on the life choices that children and families have to make,  including education, leisure activities, choice of career and place of residence.  Psychological support provided by FAB and based within NHS paediatric eye clinics aims to help families manage the additional demands a visual impairment presents. The clinical psychologists work with families to assess emotional well-being and identify ways of providing intervention for any specific difficulties, for example;  anxiety, feeling ‘different’ to peers, coping with transitions (such as to school/secondary school), communication about their eye condition, gaining independence through adolescence, and parental adjustment.

Our work includes helping children with Retinitis Pigmentosa (RP), which  is the largest untreatable cause of hereditary blindness in children and young adults in the UK.  Presently there is no treatment that can cure it or stop its progress .   Parents may not know the type of RP they or their children have, how aggressive it might be, how it involves the wider family, or if it has been passed on to their grandchildren.  This is why gene testing is so important because it can identify faulty genes, and consequently the RP type, its severity and hereditary pattern.  Gene testing also provides research scientists the materials for their work and the vital direct link to people who will be cured as therapies become available.

Team FAB - Amy, Isobelle, Clare, Devanshi, Emma and Ian